SoCal Jet Boats
Discussion => The No Wake Zone => Topic started by: Ken on May 18, 2014, 02:57:38 PM
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I've hinted at it here and there, but figured I'd let it out.
I am only on here very sporadically, and it seems like ONLY when I need advice or help, and haven't really offered anything myself to contribute, but my little girl, (8yo), I call her my "shadow" as she goes with me EVERYWHERE, was just diagnosed with Cancer a couple of weeks ago.
It is a hard blow to deal with, and I am just mad at life in general.
While at the same time, in the blink of an eye, my life has changed 180*.
I can't even go out to my shop as I get physically sick, because she ALLWAYS goes out there with me.
I am dealing with it little by little and I am finally back to kinda working on the jet, as all she has known all her life thru me has been, Impala's, HotRods, Choppers, and DragBoats, and the boat will be the fastest fix to get her involved again when this is all over.
It is still extremely hard to just get myself out there do do anything.
She doesn't know yet what's wrong, although she knows something is going on, so my wife and I have to keep our composure in front of her, to not alarm or scare her. Once we find out, what kind, the severity, and the cure procedure we'll explain it to her. I am not a crying type of guy, so in front of her I don't cry as she would want to know what's up, but is tell you, that while not around her, I have Never cried so much in all my life!!!
Don't know exactly why I dumped this out here, as I don't really know anyone, but maybe that's why, I can't be "judged" on the internet??? Or because there doesn't seem to be as much drama here as on the other FEW sites I'm a member on?? Again I don't know?
Well I've let it out, and still feel numb, she is just so innocent and pure, it's just not fair!!
Sorry for the downer, just wanted to talk.
Going to head outside for a bit and clean the hull a little just to occupy my mind. I moved the boat to my driveway, as far away from the shop as I could, as I just can't work in the shop yet.
Thanks for listening, Ken
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Ken,
I cannot tell you how to deal with it, I also cannot say that everything will be OK, but know this, try to live life as normal as you can. Kids are a lot smarter than anyone realizes.
What I can tell you is that what you are felling I think is pretty normal. Keep your head held high, keep laughing and smiling and have the best attitude you possibly can.
Having had enough "bad news" go through our family in the last 15 years, I can definitely tell you that what does not kill you makes you stronger. It is times like these that make you pause and be thankful for the good things you do have.
Nothing but good thoughts coming your way. I am not a religious person at all but am a believer in karma, I will send you all the good karma I have.
Please let me know if there is anything I can do, don't know what I can possibly do for you, but it can't hurt to ask.
Your friend,
GT
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Ken I'm newbie here but I can't read this and move on with out saying that your little girl will be in our prayers
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Ken sending prayers your way and hope you can keep your head up and work thru all this. I feel your pain as we have been dealing with health issues with my 2 year old and my 8 year old this year. Sometimes the best thing to do is just keep on keepin on and try to do what you normally do. Best of wishes to you and your family bud.
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Thanks guys,
Wasn't really expecting a response, but really do appreciate your thoughtfulness!! My little girl IS my world, and I guess I just needing to speak my mind with other than a family member who has the standard response of, a hug, telling me it will be alright, and telling me to let it all out.
I realize they are just trying to help, but sometimes it's just "too much", if that makes sense, without me sounding unappreciative!!
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I have no words..... Other than do what you do best and be that little girls rock!
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Teach her to hold the camera steady, check her lighting, and to edit Daddy throwing tools. Because we really like pictures around here.
Prayers coming for you and yours.
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most all of us have kids here,
we read your words...
and feel your pain.
stay strong
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Speechless... all I can say is You, your daughter and your family are in my prayers.
Sent with my Fingers
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just having had a daughter myself i cant even imagine what you're going thru right now. this little girl has me wrapped around her finger and she doesnt even know how to control them yet. heh.
what i do know is that my family has had quite a few cancer scares and all of them have turned out for the best. i posted not too long ago about my little girl being born in the NICU, tubes and everything. i had to put on that "strong face" everyday and hold it together, then sometimes at night i would drive home while my wife stayed there. not because i really needed to do anything at home or get anything. just to get away and let it all out.
feel free to continue to tell your story and let it out too. it helps...
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Thanks again guys.
Up and can't sleep, she goes in to have a bone marrow sample removed at 9:00am tomorrow. Third operation to get a sample of some sort from her in the past 2 weeks.
I'm going in to work at 4:45am like usual, but leaving work at 8 to get her there, and the wife and I will stay there till she wakes.
I just kinda walk around like a zombie in a haze!!
I'm a welder at work, so when the bell rings, I'm on my toes, and have my shit together to get a great product done, but at home, with no boss on my back, all I do is look at her, or walk around in a fog/haze.
No appetite, went from a 6 pack or so of beer a day to not a drink of any kind in almost a month.
I've got 5 other kids, (and they are really helping us too), and 5 grandkids, but this little girl is "my baby girl" and the one I'm closest to!
Washed out the boat (will be replacing the stringers) and did a little 120 grit sanding, but just wasn't into it today!!
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Hi Ken...
Like someone else said earlier, a lot of us on here are parents... Hearing something like this tugs on all of our heart strings more than you know. Please, always remember, no matter how hard it can be at times, power of a positive mind can and will work miracles....
You said you are new around here, but I will tell you this is a very tight knit group... Full of so many, very great people.... I can assure you, you have numerous prayers being sent your way..... Many thoughts and good wishes being sent to your baby girl.....
Stay strong..... And always smile, for that baby girl of yours needs it most.... 💕
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That's just terrible news man, I'm sorry to hear it. You know that kids are the strongest out of all of us though, they have the ability to bounce back from a lot of things. I'm hopeful that your little girl is able to weather this little storm that's happening in her life. You've got to be strong for her and keep her positive and fighting this. Good luck to you man, thoughts and prayer for you and yours.
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Mornin Ken
There is nothing I can do or say to ease your pain but know this we are a very tight group! Now that you have shared your story we are all hurting and praying for your daughter and your family. I also have a little girl who is my little doll and she's 4 so every time I check this thread it bring tears to my eyes. Stay as strong as you can a please keep us all posted you have now made us all apart us this.
God Bless
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Ken,
My family and I are praying for you. Keep up the good fight!
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Prayers and thoughts going out to you from my family and myself. My heart aches for you n your little angel. I understand the relief of venting on a forum , please keep us posted and if there is anything we can do just ask.
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Jeez, you are all pretty amazing! Thanks, guys, and now GALS too!!
Sitting here in the waiting room, she's going for a CT scan and PET scan, then the Marrow retrieval.
Lots going on in this little girls day.
I wish I could show her this, so she would see how many people are thinking of her, but since she doesn't know the TRUE severity of what's going on, I can't. But when we find out and she finally knows, I'll be Shure to show her this.
Thanks again SOOO much EVERYONE,
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wow Ken, very sorry to read about your little girl. have two of my own and i wont even begin to try and understand how you feel. know that many people are here for yall and my family will pray for her healing.stay strong for her. Mike
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most all of us have kids here,
we read your words...
and feel your pain.
stay strong
X2
from my phone
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No words to say about this I hope everything gets better for you and your family! Thoughts and prayers coming from this way also!
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I couldn't imagine what ur going threw not would I wish it on my worst enemy, I have two kids and I would do anything in the world for them. We as in ur entire SCJB family are here for you day and night. If there is anything we can do just say the word and in time being we are all keeping ur baby in our thoughts and prayers daily!! Stay strong brother and keep us posted.
SRC
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Ken
Any updates? You guys are in my thoughts and prayers today.
Mark
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Ken
Any updates? You guys are in my thoughts and prayers today.
Mark
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x2 on that
how is the baby girl doing ???
SRC
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We are just in a waiting/ holding pattern. Her blood work came back good, but the MRI, and CT scans show "growths" in different areas of her body.
Although the blood "seems" clean, they are saying it is most likely Lymphoma!!
We are still waiting for the results of the Bone Marrow tests.
We live in Spokane, which is on the east side of Washington, right at the Wa/Idaho border along I-90, and the testing is being done in Seattle on the exact OPPOSITE side of the state. As soon as I find out anything I'll let you guys know.
I TRULY APPRECIATE THE CARE AND CONCERN HERE, ITS NICE TO KNOW THAT COMPLETE STRANGERS HAVE COMPASSION FOR MY INNOCENT LITTLE GIRL...THANK YOU SOOO MUCH, Ken
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Here's her stitches from where they took out some of her bone to biopsy. While it may not seem like a big deal, that is a real cut/ slice out of my little princess!!!
I'm also taking this pic to my tattoo guy, and am gonna have it tattooed in the exact same place on my ankle.
Going to get a t-shirt made that says "boys dig girls with scars!!" For her also.
She's extremely concerned that people won't like her with a scar that big.
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once that heals you wont even be able to see it. plus i cant remember the last time i judged someone based on their ankles. chances are later on no one would even know unless she told them and pulled her foot up to their face and said "see look, right there..." pinched it really tight until it turned red, etc.
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I know, but in her 8 year old little mind, it's a big ordeal, no matter how much we tell her no one will care. I've got quite a few tattoos, so the one I get won't be to out of the ordinary, but it will be a connection that only her and I have, and if it makes her feel special I'm all for it.
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Ha, I like the shirt idea! That's clever. Anything to make them feel "normal".
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Wow, its crazy to see how inspiring and strong young kids can be. Wishing the best for your daughter and family. I dont have kids, I can only begin to imagine what you feel. We should do a meet in support of her!
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Although a "meet" would be fantastic, I'm up in Spokane, Washington, with a broke down boat.
Even though YOU -Ridindirty89- live in my hometown (LindaVista to be exact, right next to Kearney H.S.) man I miss home, wish I never left!!
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Ken you tell her girls with scars are COOL!!!! It means she's got a story to tell.... It means she's one tough cookie!! Battle scars for that sweet angel, battle scars that show she was a warrior and conquered!
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We are just in a waiting/ holding pattern. Her blood work came back good, but the MRI, and CT scans show "growths" in different areas of her body.
Although the blood "seems" clean, they are saying it is most likely Lymphoma!!
We are still waiting for the results of the Bone Marrow tests.
We live in Spokane, which is on the east side of Washington, right at the Wa/Idaho border along I-90, and the testing is being done in Seattle on the exact OPPOSITE side of the state. As soon as I find out anything I'll let you guys know.
I TRULY APPRECIATE THE CARE AND CONCERN HERE, ITS NICE TO KNOW THAT COMPLETE STRANGERS HAVE COMPASSION FOR MY INNOCENT LITTLE GIRL...THANK YOU SOOO MUCH, Ken
Hey Ken
How long before we find out something on our little girl!
Mark
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Crap, sorry Mark, didn't see your reply.
Here's a run down...
Blood has been drawn 4 times now for testing, bone marrow has been collected, MRI, and CT scan has been done, and tomorrow, she is going in for a PET scan.
She has a growth on each of her ankles, on a thumb, and on her forehead. The blood work comes back clean for Leukemia, but not negative for Lymphoma. Our town (Spokane, Wa.) doesn't have the facilities for the in depth microscopic and biopsy tests, so everything is being sent to Seattle, and it is still inconclusive, so tomorrow with the PET scan, they will be checking her blood and organs.
The hardest part is not knowing what is wrong with my little girl. Once it is figured out, we can come up with a plan of attack and cure her, but man o' man the waiting is HARD !!
Once I find out any knew, news I'll be sure to post it. Thanks for taking the time to be concerned enough to ask about her!!!
Ken, Belinda, and my baby...Bella Carvalho
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Hey Ken I donot know you but am going thur life changing stuff also / as men we find it hard to talk about up close and personal stuff I finally had a moment like yourself and put it out here on FB and the support and comments really helped a lot knowing there are some truly great peeps out there that care and such. Hope that all goes well with your daughter. Dads and daughters have a special relationship. Just in case you were wondering. My high school sweetheart and wife of almost 40 yrs has Alzheimer's at 58 yrs old.
Stay strong and everyone's thoughts and prayers are with you
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I ended up on this site by a life changing event. Two years ago I went to the doctors with stomach pains and left the office with stage 3-b colon cancer. I had a 11cm tumor removed with a third of my colon. Then the chemo started six months every two weeks crap. One year later a new tumor was found already 9cm in growing. Time for a doctor change and a new hospital here we come Loma Linda. Surgery again and six months of Chemo again. The first week that I went for chemo I was sitting in the infusion chair on Craig list looking at jet boats. I have wanted one all my life so the following week I had one(Wife thinks I'm crazy). For the last five years I have been putting on a event called shoot for life. We raise money to help families that have been struck with these terrible cancers. I see no reason this group would not be able to pull off a great event. We also have one called ride for live, rope for live you tube it ride for live is the oldest and the biggest. Myself and my wife would be willing to help with anything.
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Crap, sorry Mark, didn't see your reply.
Here's a run down...
Blood has been drawn 4 times now for testing, bone marrow has been collected, MRI, and CT scan has been done, and tomorrow, she is going in for a PET scan.
She has a growth on each of her ankles, on a thumb, and on her forehead. The blood work comes back clean for Leukemia, but not negative for Lymphoma. Our town (Spokane, Wa.) doesn't have the facilities for the in depth microscopic and biopsy tests, so everything is being sent to Seattle, and it is still inconclusive, so tomorrow with the PET scan, they will be checking her blood and organs.
The hardest part is not knowing what is wrong with my little girl. Once it is figured out, we can come up with a plan of attack and cure her, but man o' man the waiting is HARD !!
Once I find out any knew, news I'll be sure to post it. Thanks for taking the time to be concerned enough to ask about her!!!
Ken, Belinda, and my baby...Bella Carvalho
Ken
Thanks for the update. No news is better than bad news. We think I you guys daily keep up the good fight and as always keep us posted.
Mark
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Another quick update... Bella was in unbearable pain on Fri. Night, so we brought her to the Hospital. After the usual 45 min vital signs and check in, while the whole time all I could do was just stand back in horror watching my little girl suffer and cry in pain, she as admitted officially.
I fully understand that the Drs. and nurses have to do all the pre pain medicine stuff, and check her out, as they don't know us, from the next person in pain, but it was still gut wrenching for my wife and I.
So then they put her on a morphine drip, and the pain is being managed. She is still hurting, and it is still soo soo hard to just stand there and watch her in pain, but it's all we can do.
They have found several "hot spots" on the PET Scan, in the back of her knees, her groin, and her ankle. She has now gone down for another MRI, to check out her wrists, that are really starting to hurt her, more than it has lately.
Little to no sleep, and just pacing back in forth in this Childrens Hospital room is driving me nuts, but I finally had a chance to write this while she is having her MRI.
Only 1 adult could go with her, and while it was hard to do I chose to not go so her mommy could be with her.
Anything more and I'll update when I can.
just squirtin, sorry to hear that, I hope things get better for you guys, that's a long lifetime together.
jimpen, man that's a kick in the balls, sorry, I hope things get better for you. I had no idea how many this disease affected. It's a life/ eye opener.
Thanks all for the support, Ken
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Another quick update... Bella was in unbearable pain on Fri. Night, so we brought her to the Hospital. After the usual 45 min vital signs and check in, while the whole time all I could do was just stand back in horror watching my little girl suffer and cry in pain, she as admitted officially.
I fully understand that the Drs. and nurses have to do all the pre pain medicine stuff, and check her out, as they don't know us, from the next person in pain, but it was still gut wrenching for my wife and I.
So then they put her on a morphine drip, and the pain is being managed. She is still hurting, and it is still soo soo hard to just stand there and watch her in pain, but it's all we can do.
They have found several "hot spots" on the PET Scan, in the back of her knees, her groin, and her ankle. She has now gone down for another MRI, to check out her wrists, that are really starting to hurt her, more than it has lately.
Little to no sleep, and just pacing back in forth in this Childrens Hospital room is driving me nuts, but I finally had a chance to write this while she is having her MRI.
Only 1 adult could go with her, and while it was hard to do I chose to not go so her mommy could be with her.
Anything more and I'll update when I can.
just squirtin, sorry to hear that, I hope things get better for you guys, that's a long lifetime together.
jimpen, man that's a kick in the balls, sorry, I hope things get better for you. I had no idea how many this disease affected. It's a life/ eye opener.
Thanks all for the support, Ken
Hey Ken
Sorry it took me so long to reply we were away for the weekend. Sorry to hear Bella is in so much pain. Have the Doctors figured out her prognosis yet? Were all praying for Bella and your family.
Mark
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I'll try to get an update tonight. Living at the Hospital, leaving at 4am to get to work on time, stopping at the house to move cars around and feed the dog, and try to make it looking like we are at home so no one breaks in, and volunteering for as much overtime as possible. ...the bills are already showing up in the mail
Just extremely busy, and doing it all so my wife can stay with Bella 24/7 so she is NEVER alone.
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Stay strong and positive. My wife and I send hugs to your baby girl. My Mother believes that positivity was a large part to her winning the battle against Ovarian Cancer. And so do I. We wish your family the best.
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Sending you prayers Ken. Im a father of four and cant imagine what you and the family must be going through! Like everyone else here...our thoughts are with you!
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If you need anything from my family please don't hesitate to ask. We're all ways willing to help with all we can. We have been through a lot ourselves and with friends. Stay strong and lean on friends and faith you will need it. We will keep you family in our prayers.
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I haven't replied yet because I don't know what to say....every day I read this and tear up a bit....and feel lucky as hell that my little boy is healthy. I can't imagine what's going through your head as a parent. Stay strong, she needs you be the rock that she can rely on.
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Update:
They started chemotherapy last night. She has an extremely rare form that affects less than 3% of adult cancer sufferers. There is a zero report of it in children world wide. It is a form of leukemia that affects the blood and skin. It is called BLASTIC PLASMACYTOID DENDROCYTIC LEUKEMIA, (B.P.D. Leukemia). They are doing a very aggressive chemo treatment of 10/5/3, 10 pills of 1 type of Chemo, 5 pills of 1 type, and 3 pills of 1 type, so in 10 days she'll at least get one dose, on five of those days at least 2 doses, and on 3 of those days, 3 doses. Sleeps for about an hour at a time, and basically throwing up on the hour every hour. They will tonight administer some anti nausea medicine. But couldn't last night? She's still on a constant "drip" of Morphine, and hurts a lot.
The hospital has been very accommodating, but man, it sucks "living" here. If all goes as planned, in 2 weeks, she will go home for a week, and then after that week, back here for another 2 weeks, for her next dose of chemo treatment in the same manner as this week.
That will go on for 2 months worth of Chemo treatments, so I believe with the breaks in between and extra days, this will be a 6 month situation??
After that, there will be a StemCell transplant. My wife and I have another daughter, Kendra, and "hopefully" she'll be a perfect match and we won't have to go on a waiting list for donors.
They already harvested cells and blood from her and in 2 weeks we'll find out if she's a match.
We have other children, but Kendra is the only one from both my current wife and I along with Bella.
The other kids are from our ex's. So they are a "possible" but not a "probable" which doesn't make sense, as they still have one of ours DNA's but the Dr. said, that how it works?!?!?
That's about all I have for now, and I'll keep you all informed as I get more info. I'm going on a 3 day migraine, and just am exhausted. Gotta get up at 4:00am to get to work.
Thanks all for your continued support and concern, I --WE-- truly appreciate it, Ken
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Thanks for the update. Hopes and prayers for the best for your little girl. I know its tough traveling back and forth to the hospital. Do they have a Ronald mc Donald house nearby? It was the best thing we did to stay there and be within walking distance to our daughter in the nicu. Its donation based, they usually have surrounding people and companies bring in food at night etc.
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Hey Ken,
I'm so sorry you and your family have to go through this.
I'm not sure if you know of http://bethematch.org/ (http://bethematch.org/). There seems to be alot of info and support about dealing with Leukemia.
Try your best to take care of yourself as well.
We're praying for your family.
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Stay strong ken, day by day, have faith and u guys will get thru it. Obstacles bring opportunities...god bless brother.
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I want to ad, that my wife and other daughter has made a Facebook page for Bella.
It is: Rarity - IzaBella Carvalho
I myself don't do Facebook, so I haven't seen it until I get to my wife's computer in a bit.
It is just going to be a page to say hi, send her well wishes, and look at and post pics of her and her having fun.
---I want to be sure EVERYONE knows, this is not a "phish" or "donation" request page, it is just for and of my baby girl.---
I am a member of a few sites such as, The HAMB, InstaGram, Jalopy Journal, Skagen, Chevy Bombs, Ford Barn, Lay It Low, etc., etc., but this is THE ONLY site I've revealed all this and shared it all. I'm either chopperimpala, or Ken on all those sites so if any one wanted to be "sure" this is all on the up and up, you are welcome to search out my username on any of those sites and see I haven't done there what I've shared here.
I guess I just wanted you all to know this is legit, and honestly for my little girl, and not a scam, since there are people out there that possibly would/could go about it in this way !?!?!?
In my original post I stated "I don't know why I'm posting this here" but I guess I felt more of a "family" atmosphere here than any where else, even though I'm very new to the site.
Thank you, Ken
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I am a member of a few sites such as, The HAMB, InstaGram, Jalopy Journal, Skagen, Chevy Bombs, Ford Barn, Lay It Low, etc., etc.,
A "FEW" sites? :sly:
I have trouble keeping up with the three I'm on. :)
Is the anti nausea medicine helping any?
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Ha, yeah, that's about ALL of them though. They are safely saved in my "FAVORITES"!!!
If it wasn't for a favorites button, I wouldn't remember any of them.
And I posted all of them, so that nothing was hidden on my behalf.
No the anti-nausea medicine isn't working unfortunately. She is vomiting pretty much "on the hour". It hurts me just holding the pan for her and her having to have to go through that. It's like dry heeves. Gut wrenching!!
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Stay strong brother. You and your family are in my family's prayers daily...
I know everyone here has already told you but let me know if there is anything I can do to help.
Sent with my Fingers
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Ken you have prayers from Ohio headed your way dude!! Give that girl a hug from us..
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Hi ken....
I started following your story on facebook... Having a little girl of my own, it just hits home, if ya know what I mean... Bella is just darling by the way, and I can see a fighter in that sweet face of hers.... Hang tough there dad!!! She needs you... And thank you for feeling open enough to share your family's story through this.... By doing that you have so many prayers and positive thoughts supporting her, and many more to come! When volumes are spoken, mountains can be moved. 😊
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Thank you Heather.
She IS a fighter, and a stubborn one at that, but I can't take all the credit, as she has a great mother that helped raise the fighter in her also.
Thanks for following on Facebook, the more people that see and follow her, means more people become aware of the type of cancer she has and MORE IMPORTANTLY to me, puts a smile on her face, when she sees how many people are "checking her story out".
We've decided to paint the boat, metallic orange, as orange is the universal color for leukemia, and well, I love METALFLAKE, so it will be a tribute to her, and for the fight against her disease. Now I just gotta find some orange flake on eBay, and 1 step will be down
Thanks again SOO much, Ken
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I thought it might be nice for Bella to be able to put a face to the well wishes. Left to right Sierra, Teresa & Cowboy Mark
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Ha Ha, thanks Mark. Since I don't know how to send this pic from the iPad to my wife's phone :screwy: , I'm going to take a pic. of the iPad, and send it thru my phone.
Thanks, and have fun for us at the lake.
Ken
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If anyone is interested, my wife, daughter, and myself have been posting pics of Bella smiling, playing, and having fun on my Instagram account.
It is: ken_carvalho_sr
Since several people have asked for pics, and progress, I figured instead of posting non-boat pics here it would be easier to see her on I.G.
You are welcome to just look and see her progress and are under no obligation to "follow", like or anything (obviously you know that) like that. My wife's friend did start a fund, (I had no idea) and it is listed there but want you to be sure this is not a "tacky attempt" to get you to look at that at all.
I just want as many people as possible to see my baby girl, laughing, playing, and having fun.
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I think u need to post up the link for the fund!!! I don't have a insta gram :( but I'm sure there are tons if guys that are super Into helping out, I know u have never asked for any kind if support but I'm sure the bills are crazy expensive and if we can get all our boys from SoCal to pitch in 20 bucks a guy it would sure make a huge difference N I'm sure relieve some stress on ur part!!!
SRC
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I think u need to post up the link for the fund!!! I don't have a insta gram :( but I'm sure there are tons if guys that are super Into helping out, I know u have never asked for any kind if support but I'm sure the bills are crazy expensive and if we can get all our boys from SoCal to pitch in 20 bucks a guy it would sure make a huge difference N I'm sure relieve some stress on ur part!!!
SRC
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Ummmm, I so DON'T want to do that as I never intended this to be a thread, or posting where I am "asking" for help.
Let me think about it for a bit.
I came home from the hospital today to do some chores, pick up, mow the lawn etc., and just for a break of fresh air from the "sterile" hosp. environment.
I understand and appreciate the fact everyone wants to help, but I more want this to be a morale booster, and a way to show her people care, when I read to her all the nice things people say.
.?!!??!!
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I can't even imagine what you are going through right now!!!! Everyday I am praying for a speedy recovery and for your family!!!! I know I would totally be down to pitch in some money to help with medical bills cause I know how those can stack up on you.
I know that is not what you set up these postings for but I am always willing to help someone out, especially a fellow SCJB member
SRC
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I completely understand and didn't mean to step on toes, just wanted to let you know that you have help from ur SCJB family, I found and now following you on the insta gram, didn't know the wife had one hahahah anyways ur daughter is gorges!!! And it's now good to put a face with the name. I'm here for u bro!!
SRC
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I've been sitting back and waiting to see how things would turn out (always hoping for the best), and decided it was time to post a little note.
From what I can see through your posts, you are handling yourself and your family very well and deserve recognition for all you are doing. I've started following the FB and IG threads and look forward to seeing a speedy recovery from your little girl.
As of this posting you have about 60 posts in this thread, but nearly 2000 views. Many of the members of SCJB are here to gather info and don't post, but still want to know how things are going, so please keep us in the loop.
And know this, if you need help, need something that is just out of reach, or just need to vent... There is always a SCJB member willing to help out.
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5150: Oh, no, no toes stepped on!!
Crew chief: THANKS !!
Kroger: thanks, and yes piling up fast.
O.k., my biggest concern is that all along I made this thread to:
1) ...TALK !! What this has done to my little girl has kicked me down so hard, I'm having trouble getting up. I have a VERY small circle of friends in the "non"- Internet world, as in the past, two "best friends" on 2 different occasions ripped me off for a lot, so my attitude (what is tattooed on my chest) is: TRUST NO ONE ! So here was a place to get the word out and release some frustrations of life without having to actually face anyone face to face!!
2) ...Get the word out about my little girl, so people are aware of this disease. I myself knew that Cancer was bad, but truly had NO IDEA how bad it was and how many people, especially children it effects.
3) ...Just hoping people would write down words of encouragement so that I could show her that people out there care about her.
Another concern is that I do not want people to think that this was all a ploy, to in any way think this was an under handed way to lure people and get them to give me money!! I believe that goes along with MY trust no one attitude, because I fear, that would be the first thing I would think if I myself saw a thread like this one??
This is a hard thing for me to accept help, as I moved from SanDiego at 16y/o to Spokane, Wash. And have been on my own since. Married, divorce after 9 years, and then married again this time for 19 years, have raised all my kids, have none out of wedlock, and have basically taken care of myself and my family on my own since 1984.
It's also hard to believe that people/ internet friends (like you all) are willing to give money away for nothing to a complete stranger and his daughter???
I hope this makes sense, as it is hard to "hunt-n-peck" at a keyboard, and convey my thoughts to an internet site.
So, with reluctance, and if anyone is OFFENDED, or feels this is INAPPROPRIATE or any moderators want it removed, I will remove it:
The site is: gofundme.com
The title is: Bella Carvalho Cancer Fund
Also she has a Facebook that my wife and daughter are posting things on. I don't have F.B. myself, only the Instagram, but if your interested it is called: Rarity-IzaBella Carvalho
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5150: Oh, no, no toes stepped on!!
Crew chief: THANKS !!
Kroger: thanks, and yes piling up fast.
O.k., my biggest concern is that all along I made this thread to:
1) ...TALK !! What this has done to my little girl has kicked me down so hard, I'm having trouble getting up. I have a VERY small circle of friends in the "non"- Internet world, as in the past, two "best friends" on 2 different occasions ripped me off for a lot, so my attitude (what is tattooed on my chest) is: TRUST NO ONE ! So here was a place to get the word out and release some frustrations of life without having to actually face anyone face to face!!
2) ...Get the word out about my little girl, so people are aware of this disease. I myself knew that Cancer was bad, but truly had NO IDEA how bad it was and how many people, especially children it effects.
3) ...Just hoping people would write down words of encouragement so that I could show her that people out there care about her.
Another concern is that I do not want people to think that this was all a ploy, to in any way think this was an under handed way to lure people and get them to give me money!! I believe that goes along with MY trust no one attitude, because I fear, that would be the first thing I would think if I myself saw a thread like this one??
This is a hard thing for me to accept help, as I moved from SanDiego at 16y/o to Spokane, Wash. And have been on my own since. Married, divorce after 9 years, and then married again this time for 19 years, have raised all my kids, have none out of wedlock, and have basically taken care of myself and my family on my own since 1984.
It's also hard to believe that people/ internet friends (like you all) are willing to give money away for nothing to a complete stranger and his daughter???
I hope this makes sense, as it is hard to "hunt-n-peck" at a keyboard, and convey my thoughts to an internet site.
So, with reluctance, and if anyone is OFFENDED, or feels this is INAPPROPRIATE or any moderators want it removed, I will remove it:
The site is: gofundme.com
The title is: Bella Carvalho Cancer Fund
Also she has a Facebook that my wife and daughter are posting things on. I don't have F.B. myself, only the Instagram, but if your interested it is called: Rarity-IzaBella Carvalho
Hey Ken
How's little Bellla? Can you post the link to the gofund site, my hillbilly ass can figure that site out.
Prayers & Thoughts
Thanks
Mark
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Mark, it's: http://www.gofundme.com (http://www.gofundme.com)
Usually when I type out a link it automatically makes it accessible. For some reason that doesn't work here? ....there it is, it worked this time... I put a picture up with I believe all the info in it? When you go to the gofundme site, there is a search box, and that's where you type in:
Bella Carvalho Cancer Fund
then press "enter" or "return" depending on your phone/iPad/computer.
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A quick update.
She finished up her chemotherapy on Tuesday, it was hard and rough on her, but it did what the Drs. wanted. She is at 3% of her White blood cells, so she is susceptible to infection, pneumonia, sickness, etc. She is being constantly monitored, then yesterday she started on a blood transfusion. That went well. She is now just laying in bed sleeping and resting. She is EXTREMELY emotional thru all this, because of the medicine. It takes a lot out of her body, and she has hi's and lows. There are times where she wants NOTHING to do with me, and her just hearing my voice agitates her and makes her cry. Same thing towards her mom or sisters. That, other than seeing her in pain, is one of the hardest things. I know it is just the medicine making her act and feel that way, but it is hurtful and bothersome sometimes.
So after 2 more rounds of the chemo regimate, we then go to Seattle for 6 months, for the bone marrow replacement. She and my wife will,stay there, I'll be visiting on the weekends, and staying home during the week in Spokane to work, take care of things at home.
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Ken , I can't even imagine how hard this is even tho you keep us updated on all of this I also have a little girl of 4yrs and couldn't imagine this type of situation I'm lost for words your a great dad and your wife is a great mother stay strong and Bella will pull and stay tuff with you guys please keep the updates comin my families prayers are with your family
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Mark, it's: http://www.gofundme.com (http://www.gofundme.com)
Usually when I type out a link it automatically makes it accessible. For some reason that doesn't work here? ....there it is, it worked this time... I put a picture up with I believe all the info in it? When you go to the gofundme site, there is a search box, and that's where you type in:
Bella Carvalho Cancer Fund
then press "enter" or "return" depending on your phone/iPad/computer.
Hey Ken
Thanks I figured it out this morning. I'm kinda slow with technology! Lol! Tell Bella to keep strong and she's in our thought and prayers. We're going to Big River this weekend for the meet I will get a group pic of everyone and post on here for Bella to see were all thinking about her.
Mark
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Carrera202: thank you
Mark: that would be F-ing awesome, thank you.
I have a request for anyone that has an ORANGE FLAKED boat, or just Orange in general.
Not sure if I mentioned it, but ORANGE is the universal color for childhood leukemia (such as pink is for breast cancer, clear is for lung cancer, etc.) so that is the color I've decided to paint ours.
I bought a pound of Orange Flake, and 25 Grams of Orange pearl additive, but I'd like to see some "close up" views of different shades of orange on boats. I googled it but wasn't very successful, thanks.
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Carrera202: thank you
Mark: that would be F-ing awesome, thank you.
I have a request for anyone that has an ORANGE FLAKED boat, or just Orange in general.
Not sure if I mentioned it, but ORANGE is the universal color for childhood leukemia (such as pink is for breast cancer, clear is for lung cancer, etc.) so that is the color I've decided to paint ours.
I bought a pound of Orange Flake, and 25 Grams of Orange pearl additive, but I'd like to see some "close up" views of different shades of orange on boats. I googled it but wasn't very successful, thanks.
Not any flake, but here's my float.
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77, thanks, I like it.
Also figured I'd put some pics. up of Bella doing some of the things she likes doing. Other than the "normal" dolly's, dress up, and coloring, she spends a lot of time in the shop with me. Here she is learning to "shrink and stretch" sheet metal, and use the bench top English wheel, and MIG weld...
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She likes the Chopper I built, and the HotRods we are building.
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I chopped my '32 sedan 6", and channelled it 3", and when mom goes with us, Bella will be sitting in the back seat, so she wanted to be sure she would fit back there after I made and installed the rear floor half.
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...and since we are also a "LowRider" family, HipHop music goes hand in hand with my lowered cars, and she wanted to do some HipHop "mixing" at my sons wedding.
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I got her a face mask so she can help out and be in the shop when I paint. We also like metal flake... I kinda "collect" METALFLAKE!!!
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And finally for now, here we are all together. I'm "white" and so is my son... But the wife is Mexican, and the girls all got the brown skin...thankfully!!!
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I hope you get back to a normal life soon. You have a beautiful family and a extended family here all pulling for Bella. I look forward to going boating some time soon with Bella and your family. Stay throng and keep the faith. Love the pictures!!
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Here's my orange hallett! You and your girl are in my prayers man!
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Hey Ken
Here's a couple pics of all of us at Catfish Cantina tonight. We made a little announcement about little Bella and these 2 pics are of us all wishing her well and we all love her and you guys. We can't wait to have you all at a meet.
The SCJB Gang
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So, with reluctance, and if anyone is OFFENDED, or feels this is INAPPROPRIATE or any moderators want it removed, I will remove it:
The site is: gofundme.com
The title is: Bella Carvalho Cancer Fund
Also she has a Facebook that my wife and daughter are posting things on. I don't have F.B. myself, only the Instagram, but if your interested it is called: Rarity-IzaBella Carvalho
No offense and I find it totally appropriate. I fully approve this.
I am now following you on IG. I havent said much here but I have been only following this thread and reading it as I don't have much to contribute or say, but know I am following the updates. Thank you for sharing this with us.
I wish you the best and all the strength in the world.
...and Happy Father's Day.
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Brad, THANKYOU.
I feel completely relieved now, as this is YOUR site, and I was so worried about stepping on toes, and/or pissing mostly you, and others off.
Since I am so new around here, and then all of a sudden, here I am asking for money.
I know it was overkill with all my posting of telling everyone why and how hard it was to give out the donation site, but I really needed everyone to know that WAS NOT my intentions of starting the thread. There are so many crooks out there in real life, and in the internet world, that it was just something I needed to state and say outright.
I have been following the SCJB Instagram, but didn't realize you had one yourself, but am following that one too.
And then there is everyone's ManCrushMonday boy, the BigThrobbinJohnson, OMAR. I found him on there too.
**** you guys are great. Can't wait till this chapter of my life is fixed, I find that elusive perfect TIG welding job in SoCal, and my family moves "back home" and drinks a few, and hangs out with all you fuckers.
Thanks, Ken
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**** ?
Sorry forgot this is a family friendly place!!
I'll change the F*CK to: "DANG, You guys are great"!!!!!
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To the SCJB "gang":
I showed Bella the pic of you all, and she smiled and gave a thumbs up. The medicine for the transfusion has made her really sick, and she had an allergic reaction to the anti-biotics, so she wasn't able to offer much more than that, but she, as well as my whole family appreciates your guys support and love.
Thanks so much, Ken
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Happy Father's Day man!
I read your updates every night. You and your family remain in my prayers.
Sent with my Fingers
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More power, THANKYOU.
Today was really hard on her, as she felt really bad that she couldn't do anything for me on Father's Day because she is stuck in the hospital. But I told her all I cared about was that we were together, and the only thing I wanted her to "get" me was to "GET BETTER". That made her feel good.
The other issue is, is that the chemotherapy has finally affected her hair. We/she knew this and have prepared for it, but now that it is finally happening, it has really affected her emotionally.
She thinks she will be ....ugly, no one will like her, it will never grow back, people will tease her!!!
While we as adults understand that it is just temporary, and it will come back, to an 8 y/o little girl who has always had long flowing pretty hair, it is a major and traumatic ordeal.
Man this is hard. As a normally non emotional, heavily tattooed, kinda chunky, take no shit from anyone, and never leaves home without my StainlessSteel knuckles in my backpocket, I sometimes just break down and cry like a baby!!
It's a humbling situation, and now I realize how important my family really is!!
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No harm in breaking down. Anything to remain that "rock" for your baby girl...
And btw she welds better then me haha. That is awesome seeing her in the shop!
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I, too am like Brad. I have been following your thread and read it daily. I have liked your Facebook page also. I don't comment much on here, but have said daily prayers for your little girl and family. Please don't ever feel like you are stepping on any toes around here. Everyone I have met from here are good people. My thoughts, prayers, and best wishes sent to your Bella and entire family!
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Our prayers are with you and your family.
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I had 3 cancer patients in my class last year. Everyone was a girl and they all blew me away with the "can do" attitude and endless smiles. One was the fourth female in her family to have it in 3 generations as a teen. Docs told her she wouldnt live to 18. She graduated at 20 last month rocking her smooth bald head all the way across the stage. I know your little girl will beat this game too. It is all in the 'good. At least that's what the girls tell me.
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LoLo: thanks
Stc: thanks
Glasscutter: it's terrible how many kids are affected, I'm glad they all pulled thru.
Update,
They finally have her off the Morphine drip!! She's in pain, but she is dealing with it, and the pain is nothing like it was before. They tapered her off, and yesterday was the LAST dose. She's been on it 24/7 since May 23rd.
She's eating a little solid food now, as they are trying to ween her off her food IV also.
They have been letting her walk around, and play a little, (45 minutes at a time) 3 times a day, completely free of her 3 bags of medicine and IV pumps.
She has lost soo much hair, but she is "kinda" o.k. with it, as we are saying that the sooner all her hair is gone, that means the sooner she will be getting better and the sooner it will grow back!!
Hair may seen inconsequential to us adults, but an 8 year old little girl is affected by it a lot. Especially growing up with 4 older sisters. Hair styles, sprays, conditioners, etc. Have been a big part of this household but now, none of that means anything!!!
That's all I have for now, thanks again for all the support, it means A LOT TO ME!!!
KenCarvalho
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Ken
What do you tell a brother who's going through a trial like you are?!
I will say that I am and will continue to pray for your family.
I can't tell you why things like this happen to people that are so innocent and pure...... God will have to explaine that some day.
I am a pastor of a church so be assured when I tell you I will pray for you little girl, and for you.
I agree with those who told you that the things you are feeling are quite normal.
I hope and pray all works out for the good for you and your family!
Be encouraged because with God all things are possible!
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Tepcro, THANKYOU.
When something like this happens to such an innocent, happy, and pure little person ( including my daughter and anyone else's child), it's hard to keep an open mind about why/who/and how come this is happening. Thanks for keeping us in your thoughts, Ken
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Another update, was holding this one back, for a better result, but, it's been a rough 3 days.
Bella has had a 101.4 to 103 degree fluctuating fever, she caught an infection, and has been on quarantine for 3 days, NO one in, and NO one out. So I've been suck in a waiting room for 3 days in a row, only to be able to peek at her and wave to her through a window. Finally tonight I was able to get in the room, so I crawled in the bed and laid with her and just held her (the infection was not and is not something I could give her or get from her) the quarantine was so she couldn't pass it on to other sick patients on the cancer floor, and her visitors could pass it either by way of touching things like door knobs, water fountains, faucets, etc., outside of her room. So if a visitor wasn't in the room when they discovered it, they were not allowed in. My wife also was not allowed out of the room. Every time a nurse or dr. went in, they were all "smocked up" and sterile, like they were going into surgery.
So anyways, I got to hold her, kiss her, and talk to her today, and now I'm on my way home for a quick bit of shut eye before work in the morning.
Ken
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Another update, was holding this one back, for a better result, but, it's been a rough 3 days.
Bella has had a 101.4 to 103 degree fluctuating fever, she caught an infection, and has been on quarantine for 3 days, NO one in, and NO one out. So I've been suck in a waiting room for 3 days in a row, only to be able to peek at her and wave to her through a window. Finally tonight I was able to get in the room, so I crawled in the bed and laid with her and just held her (the infection was not and is not something I could give her or get from her) the quarantine was so she couldn't pass it on to other sick patients on the cancer floor, and her visitors could pass it either by way of touching things like door knobs, water fountains, faucets, etc., outside of her room. So if a visitor wasn't in the room when they discovered it, they were not allowed in. My wife also was not allowed out of the room. Every time a nurse or dr. went in, they were all "smocked up" and sterile, like they were going into surgery.
So anyways, I got to hold her, kiss her, and talk to her today, and now I'm on my way home for a quick bit of shut eye before work in the morning.
Ken
Keep your head up buddy... I don't have the words. She is going to be a seriously strong young adult with an incredible appreciation for life, If that is a positive... I think it is. IDK...
Nothing bud good thoughts and my remaining karma coming your way..
GT
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Another update, was holding this one back, for a better result, but, it's been a rough 3 days.
Bella has had a 101.4 to 103 degree fluctuating fever, she caught an infection, and has been on quarantine for 3 days, NO one in, and NO one out. So I've been suck in a waiting room for 3 days in a row, only to be able to peek at her and wave to her through a window. Finally tonight I was able to get in the room, so I crawled in the bed and laid with her and just held her (the infection was not and is not something I could give her or get from her) the quarantine was so she couldn't pass it on to other sick patients on the cancer floor, and her visitors could pass it either by way of touching things like door knobs, water fountains, faucets, etc., outside of her room. So if a visitor wasn't in the room when they discovered it, they were not allowed in. My wife also was not allowed out of the room. Every time a nurse or dr. went in, they were all "smocked up" and sterile, like they were going into surgery.
So anyways, I got to hold her, kiss her, and talk to her today, and now I'm on my way home for a quick bit of shut eye before work in the morning.
Ken
Hey Ken
I know I haven't chimed in lately I just don't know what to say. All I can say is is just hug and kiss and cuddle that little girl every chance you get and Im sure you are buddy. Every time i check in on Bella either on here or through my wife's Facebook I go hug and kiss my little Sierra. Just know I'm thinking of you guys daily. Also if you Guys are going to do the pink Bracelets post a link where we can buy them I want some. When you see Bella tomorrow give her a big hug and kiss and tell here it's from the whole SoCalJetBoat family.
Mark
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Thanks.
just got off the phone with wife.
she hit 103.9 degrees and was not doing good. But they have the fever down, and unfortunately had to put her back on the Morphine for the pain.
Her body is building back up her immune system, and "coming back" from the chemo, but is NOT liking the process.
Thats how the nurse explained it.
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Brought my baby girl home today. NOT for good though. But it's so good to have my family at home.
We have to take her to Seattle tomorrow for the hospital consultation on her bone marrow replacement.
We will be there for 3 or 4 days, and then she comes back home to Spokane, and back into the local hospital here.
She will then start her second round of 3 chemo doses at once, and the 2 blood transfusions. Then after she is back up to her cell counts and numbers, that's when she will be off to Seattle for her 6 month stay, for the bone marrow replacement.
Her and my wife will stay there, I'll have to still go to work, and drive over there on the weekends I don't work.
She's in good spirits today, and slowly and carefully, walking around and enjoying some fresh NON hospital air.
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PLEASE be sure you and your wife get as educated as you possibly can on all of the drug routines that little girl is going to be on. Medical professionals are under such intense pressure these day due to new regulations that many things can and do get missed. Have your wife pay attention to what the nurses do and get to where you know what they will do before they do it.
Prayers for strength and a positive resolution continue to go out to you and your family Ken. Keep the posts here and elsewhere coming. It is good for us all.
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Glasscutter, thanks, that's great info.
We got a large "write on" plastic calendar, special "tackle box" like container for the meds, and an "accordion style" file folder for all the receipts, and medicine instructions.
My wife was trained yesterday for a few hours on everything, but that's a lot of info at one time, and they also gave her lots of procedural, and time stamp instruction booklets for it all to. So we are on top of it. Nothing is to overkill on safety when it comes to my princess.
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I did a copy and paste frmo I.G. so I didn't have to re-type it all again.
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Bella all smiles on this past Saturday before surgery.
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....
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I don't know why but the pictures aren't showing up? ??
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Test test ....sorry Keith.
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Bella
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:banghead:
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Other than being so pretty, the next best thing she does is keep me supplied with my beer!!!
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I'm a newbie here also but being a dad of 4 kids all I can do is send prayers from my family to yours.
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O.k., I found that if I attach the pic to my post, its there, I wait 30 seconds and it goes blank, then pops back up sideways and THEN I hit "Post" it shows up in my thread... also sideways. That's fine with me, you guys are the ones that have to bend you heads sideways to see. Ha ha
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...
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Just saw this stuff pop up on my phone while I was looking at your new pics on FB. Looks like you all are training up a bunch of young poker players. Great, I can use some more victims LOL.
Tell Bella we like the L.A. hat, but the real cool kids are Angel fans of course.
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O.k., I found that if I attach the pic to my post, its there, I wait 30 seconds and it goes blank, then pops back up sideways and THEN I hit "Post" it shows up in my thread... also sideways. That's fine with me, you guys are the ones that have to bend you heads sideways to see. Ha ha
When's the last time you updated the app?
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Test test ....sorry Keith.
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Is that Omar hiding on the other side of the boat? :sly:
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Ken I'm glad Bella looks great and seems in good spirits. It will take all the strength one can muster up to beat this. I believe that your family will beat this and it will take the whole family. When I went through this I truly believe it was as hard on my wife as it was on me even on my worse day. Keep her life as normal as possible and stay positive as hard as it may be. Please keep us updated and we will keep praying for Bella every day.
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Jimpen thanks, yeah its hard on all of us. She's in isolation, so I didnt get to go see her today, thats been extremely hard, so I'm just having a few beers at home and sharing pics of her.
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Brad, this isnt the "app" I use the socaljetboays.com web site.
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Hope to have one with you some time soon :beer: :beer:
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Glass cutter I think your referring to a pic of them playing a game called "head bands" ha ha its like a guessing game with a card on their forehead and ask yes/no questions to figure out what character they have. ha ha ha. Thats Bella, my 18y/o Kendra, and her boyfriend David.
The L.A. hat is for the fact I want to live back home in SoCal. She supports me in that with an L.A. or San Diego hat.
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Hi ken! Your family is such a positive breath of fresh air for that sweet girl of yours... Please keep up the posts and pics, as a lot of us follow daily! Stay strong daddy... And mommy too... For a little someone needs the strength more then ever... 💕
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Thanks Heather
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Trying to get back in a groove at work today. I was in the midst of teaching Bella how to TIG Aluminum e hen we got he diagnosis. Its hard sitting here and welding, knowing shes stuck in a hospital m
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Weld
No pics showing up again !?!?!?
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TIG
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My 10 yr old learned how to lay tile last week (in theory). He watched while Momma and a buddy actually put it down. Old knees were sore for days. So Yesterday he learned how to grout and actually got his hands dirty. Did a pretty good job of it too.
But teaching a little girl to weld? That is sooo cool !
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Glass cutter, this is her MIG welding.
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Laying beads all on her own.
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Some good news. Her second round of chemo went really well. She got the normal sickness and all that goes along with the treatment, but her blood counts are up, and her body reacted and did everything the doctors hoped for.
Sooooo, tomorrow she is coming home to "hang out" for 3 weeks. She will be very weak and fragile, and will be in a wheelchair 99% of the time if we go anywhere, BUT...... She will be home!!!
After the 3 weeks, she will then be readmitted for another round of chemo before heading to Seattle in Sept. For the marrow transplant.
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Two months ago, compared to today 7/15/2014
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Ken
That's some good news Bella is quite the trooper. So glad to hear she kicking this right square it the teeth. Let Bella know I have shave my head twice in my life, once 2 years ago for child cancer awareness month an the second time was last night for Bella. You guys keep fighting the fight and well keep praying.
Mark
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That's crazy!! I will definitely tell her. Thank you.
I shave my head too, but that's only because I'm over half bald anyways!!
Thanks Mark.
Ken
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Two months ago, compared to today 7/15/2014
Still got the same beautiful smile!!! Your little girl is braver and stronger than a lot of grown men care to admit.
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Yes she is, thank you. I readily admit it to her every day. Yes it's heart breaking for her mom and I to go thru OUR aspect of what's going on, but what SHE is actually going thru is only comprehendable by herself, and other children that have also gone thru this. I now look up to her!! I'm now her shadow.
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Well she's been home for a couple of days, and besides a few bumps in the road back to the hospital here and there, she's doing good. She went to a birthday party today, and it was good to see a REAL SMILE on her face versus a forced one for the camera.
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That's great news Ken we will keep her in our prayers.
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That's awesome! :thumbup:
Glad she is getting a chance to have some regular kid fun.
We tend to take this stuff for granted. Thank you for sharing to help remind us not to. :)
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Yes, taken for granted is so true. She came home exhausted, but happy. Her being happy is ALL I CARE ABOUT ANYMORE.
Today my wife, our other daughter and her boyfriend are taken her to a baseball game. I'm not a sports person at all, and there were only 4 tickets available..... So it worked out great!!
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So much good news coming your way, and more importantly, Bella's. Hopefully there will be more good things coming in the future.
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Well FUCK!! She's back in!! Since being able to go home for a while, she has to go into the Drs. Office every other day for blood transfusions and vitals, and she spiked a 103* fever, and her blood count numbers hit 0 !!! They need to be at least 375 to not be in quarantine in the hosp. so she is in a "no one in, no one out" status. The scrubbed me and gowned me and let me sneak in last night, and I didn't leave until this afternoon, but I can't have contact until those numbers rise. 5-7 days roughly. My wife is with her so thankfully she isn't all alone, but still not what we were expecting.
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Ken sorry to hear that. We will keep Bella in our prayers hang in there.
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Well ****!! She's back in!! Since being able to go home for a while, she has to go into the Drs. Office every other day for blood transfusions and vitals, and she spiked a 103* fever, and her blood count numbers hit 0 !!! They need to be at least 375 to not be in quarantine in the hosp. so she is in a "no one in, no one out" status. The scrubbed me and gowned me and let me sneak in last night, and I didn't leave until this afternoon, but I can't have contact until those numbers rise. 5-7 days roughly. My wife is with her so thankfully she isn't all alone, but still not what we were expecting.
Ken
I hope Bella and you guys catch a break soon. Keeping you all in our thoughts and prayers.
Mark
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We will also pray for your little angle could not imagine what your going through but we will have your family in our thoughts.
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Thanks!!
Been working on welding up an aluminum jewelry box for her. I made 2 of them, one I'll paint Gold Flake, and the other I'm going to polish. I had her name and her little personal saying engraved on our work engraver.
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Well Bella worked her ass off with her physical therapy, diet, rest, etc. And she was able to go to a camp adventure. It is a camp for children with cancer. Several of her nurses from the hospital, and her primary cancer Dr. are there so she is in good hands. It was hard for me to "let her go" (physically, not decision wise) as she has never been away from home for more than a day, and since her diagnosis, I have been with her everyday.
Daddy's little girl is growing up!!!
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Saw the "wedding gift" post on FB just now. Bella is beautiful and heroic. Simply awe inspiring.
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Thanks. Yes she is great. She wasn't too happy that I shared her picture, as she wasn't ready for everyone to see her baldness. I was overly proud of her, but she wasn't ready, and I didn't know. She is still getting used to family members seeing her like that, but not the world just yet.
Also, I got her support bracelet tattooed on me, since I'm a welder and manual machinist, I don't wear any jewelry, such as necklaces, rings, or bracelets, so this way I always have her with me.
It says: "You gotta have HOPE" it's what she told us when we told her of her diagnosis.
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Prayers and thought are sent your way... Keep up head up. Stay strong
E
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Prayers and thought are sent your way... Keep your head up and Stay strong
E
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Thanks. Yes she is great. She wasn't too happy that I shared her picture, as she wasn't ready for everyone to see her baldness. I was overly proud of her, but she wasn't ready, and I didn't know. She is still getting used to family members seeing her like that, but not the world just yet.
Also, I got her support bracelet tattooed on me, since I'm a welder and manual machinist, I don't wear any jewelry, such as necklaces, rings, or bracelets, so this way I always have her with me.
It says: "You gotta have HOPE" it's what she told us when we told her of her diagnosis.
Unbelievably strong girl you got there!!
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Just giving another quick update.
Haven't been on much as we have been busy, busy.
Bella is home again now, came home Friday, and is doing her Chemo as an out patient. What a rough ordeal, at the hospital she is kinda catered to by the nice staff, but at home it's just my wife and I, and that stuff makes her very sick. So between her being sick, trying to keep her as comfortable as possible, and working 60 hours a week, and doing the normal fatherly/husband things, I've been unable to keep up on top of it all here.
I do the InstaGram updates a little more often as it's just a picture and a quick note, and my wife keeps Bella's Face book updated regularly, if anyone is interested. I'll post a few pictures do her smiling because that's the best way I like seeing her.
My 19 y/o daughter also got married last week, (adding to the hustle and bustle of activity) and Bella was the ring girl for both rings. Bella also shaved her head and she has been dealing with the final true loss of all her hair. The straggling long pieces of hair here and there was bugging her so.... It's gone.
Thanks, Ken
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Ken, I myself am going through the same thing. My oldest son is 15. He has Ewing sarcoma. It's been more rough for me and his mom. You see how strong your daughter will be through it all. Thoughts and prayers to you and your family.
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Sorry to hear that bodyboarder. So hard to see our kids in pain, and be unable to help them. She's just been laying and crying all day. We may re-admit her into the hospital, so they can put her on medicine to ease her pain. Sucks! Really fucking sucks!!!
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Hey Ken, how are you guys doing? How's Bella doing? Hope she is feeling better and getting stronger every day. Hope you are doing alright brother. Know that you guys are in our thoughts and prayers!
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stc315, it's up and down. She has completed a 4th round of Chemo, and it's really kicking her ass!!! She's home for now, and just had an operation Wed. for a "port". Basically a hole in her chest, covered by a flap of skin, and sealed off to any harmful things outside of her body, to do away with the 2 lines that were in her chest, which allows her more freedom, and the chance of swimming in the ocean, when we take a trip to SoCal in the future. It's a pretty big deal to her to go in the ocean. I don't update here to often anymore because the hospital WIFI (where I'm usually at) has started blocking the SCJB website. I saw your reply on my email, so I logged on to the web to do this. If you have Instagram, check out: ken_carvalho_sr. I keep all of Bella's activities, triumphs, and her story pretty up to date there.
And most of all, thanks for asking about her, Ken
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Ken as bad as it may sound the port is a good thing. I'm on my second one now, much better then a pick line. How is the chemo working for her? Unfortunately treatment does get tougher each round as your body just gets beat down. Lot's of water and stay active as possible, will help a little. I had two rounds of 12 treatment and found by the 7th one it was hard to talk myself into going to the chemo ward. Most of us are use to going to the doctors to feel better and still don't want to go. Try going when the are going to make you dog sick. Bella has all my respect and prayers on this tough path she has to go down. Stay positive brother!!
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Ken, thank you for the update. My wife is always asking how she is doing. And since I don't have FB or Instagram, SCJB is how I keep her updated. Our prayers are always with you, your family and your baby girl. Stay strong brother and if there is anything we can do to help with your visit to SoCal, let me know.
Sent with my Fingers
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I don't know you but lots of love and prayer for the little one. Also lots of prayer to you and family keeping strong thru these trying times.
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Thanks everybody. Jim, yeah I know its better. Its just hard seeing her hurting and I'm unable to comfort her.
Just checking in while waiting for the bell to ring here at work. I'll try to update more here than I have been lately. Working 6- 10/12's then off to hospital, then home for a few hours of sleep then up at 4:00am to do it all over again is hard. But if that's what it takes for my baby girl, I'll do it. Thanks for the support, concern, and asking about her.
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Well it's been a long time since I've been on here "to post" I visit a lot, just never have anything to say!! But I figured I'd at least give an update, since some may have been wondering, and I just kinda left for a bit.
For those who are seeing this for the first time, and don't want to wade thru from the beginning, basically my 9y/o little girl was diagnosed with an extremely rare form of cancer, (she is the 33rd kid known to have ever gotten this type).
I kinda vent, talk, and post pictures on Instagram, and what little I voice here, and that's about it. I don't Facebook, or Twitter, or Timder? Or anything, so, although on my IG it looks like I'm an outgoing energetic person, actually it's the opposite.
So, with all that Laid out, Bella will be starting her 8th round of Chemo on Wednesday, she is extremely sick, and are on some steroids that are so strong that they mess with her emotions, and feelings. She can be walking on cloud nine, and happy, and in moments will be so enraged that it's like she's telling us to FuckOff, and then will break down and cry inconsolable. It's a hard thing to see her go thru this and deal with, but it's a fact of our lives now. She is losing her hair again for the third time, and while we as adults know it isn't a big deal, it's a very significant thing to a pretty little 9 year old girl. Now with all that said, I/we have NO IDEA if all this treatment is working, this form is so rare, the Drs. don't know what to expect!!! We have had an outpouring of help and support, and a lot of good people have been there for us, and we appreciate it.
Now for some good news. I'm originally from SoCal, and we visit there (I'm in Spokane, Wash. now) several times a year, but this year, it was all put on hold. Mainly because she was hospitalized for 3 months, and my wife had to give up her job to be with Bella 24/7 in the hospital, and out. So money was/is tight.
Anyways, several friends from so cal, including several "big shot" car people ...(Terri Brizio/Hollenbeck, Darryl Hollenbeck, Alex&Suzie Gambino, Aaron from Lost Angels project, Andy's-T',s TPCustoms) all chipped in and helped us go on a trip to Cali for Bella. What we wanted to do was just stop and say hi and Thankyou to everyone that helped and gave her gifts, and get her to Imperial Beach and ChicanoPark in SanDiego.
But what ended up happening was an impromptu Lowrider Crusie thru the streets of SanFrancisco, and a 200 plus car turnout in the parking lot of the SF Giants, put together by Tyler from TPCustoms, then spent the night at Gambinos Customs and had dinner, visited Darryl's shop (Vintage Color Studios) he's the guy who painted Mumfords '13 GNRS winniner built by Brizio's Rod Shop, and The IronOrchid, and many others, toured Andy's-T's tee shirt shop, and Terri Brizio set up horse riding lessons for her. Aaron is the guy who built the giveaway roadster at the Ventura Nationals, and he took her surfing, and the biggie, was we took her to Disney Land. She got to go behind the scenes, meet and greet, and head of line passes. I know these are all HotRod/Custom related things, but figured most of you are car people too.
Anyways, that's about all for now, I'll try to keep more current info, I'm just kinda of a slacker lately with all the shit going on in our lives, and that's all on me. Hope this was informative and welcome here, as I feel that I gave up on the site, but in actuality, a day goes by, then a week, then a couple of weeks, then a month, and then I don't know how to re-approach you all, but this time I just did!!
Thanks, Ken
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Hi we are Debbie and Brian. Our thoughts and prayers for your family. Gods speed on her recovery...
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Ken.... This is what this site is all about. A lot of us know each other in person, and a lot of us know each other via this site.... Making us all feel as though we actually do know each other in person, even if we haven't met. Kinda like those friendships we all have throughout life, where you are friends with people, yet only talk every once in a while, but pick up like it was yesterday.... That is one great thing about this site.... People are not forgotten, nor judged. 😊
thank you for the update.... I wish for your sweet girl to get through this round with the utmost ease and comfort.... I hope for you and your family to have the happiest most grateful Thanksgiving next week...
And.... When you find the time to update us here again.... Whether it be soon or later..... A day or a year from now.... We all will be here and happy to hear.... Cheers, and Happy Holidays!
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Hi Debbie and Brian, Thanks, and it's nice to meet you.
Heather , I know, and thanks for understanding. I want to be on here more, and strive to, but most of the time I use an iPad, because I can barely see the screen on my phone, and the iPad is a wifi only thing, and the hospital wifi blocks this site, among others, and other than work, where my phone gets ZERO reception, I don't have as much access to here as I should. All excuses I know, but, I'm going to try harder. I've said that before too, but sometimes I'm just sitting here with her, like I am now, and I just don't have it in me to post or write anything. Seeing her in pain is so hard, that NOTHING matters to me other than her comfort when that happens. When she is medicated and finally out of pain, she usually falls asleep, so I just try to be as close and touch her as much as possible without disturbing her, thus not getting on the iPad. She's been asleep for a little while, and I'm sitting up now, and writing this, but it doesn't normally happen this way.
Thanks again for the support, it really is appreciated....Ken
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You are doing EXACTLY what you should be doing.... Giving her as much of you and your time as you possibly can.... That is all that matters... Please never apologize for not updating people on any website, or social media. We are simply here to listen, and support when you choose to fill us in. Take care of your little girl, and never feel guilty for giving her every second of your available time... We all understand that beyond words. 😊
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Ken I'm glad to hear that you had a bright spot going through all of this. It's important to lift one's spirit to keep the will to fight in them. When you are sick and down it becomes easy to through in the towel I know as I have been there myself. We will keep your family in our prayers.
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Ken
My wife was just reading me the post from Bella's Facebook page. REMISSION!!! That is so awesome I'm so happy for her and you guys. Keep us posted on any updates.
Mark
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Ken
My wife was just reading me the post from Bella's Facebook page. REMISSION!!! That is so awesome I'm so happy for her and you guys. Keep us posted on any updates.
Mark
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. Shoot I see know she is a anchor woman on the news. She looks good
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Ken -
Keep your head up pal. I have an 8 month old son at home and couldn't even imagine the pain you feel. Sending good thoughts your way man!
'96 Carrera Eclipse "Boobie Bouncer"
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Hi everyone, been another long gap in my time on here, but wanted to give another long overdue update. I interact with a few of you on Instagram, and watch for for everyone's jet pics over there.
Anyways, a lot has been going on. I'll highlight the good stuff and no need to go over the bad.
Christmass was pretty damn good for Bella. She was on the hospital and was almost there for Christmass, but was released the day before Christmas Eve. And got lots of pesents. The big one was an "egg chair" for her American Girl doll. But the big thing about that was, we have a close friend who is a custom painter, Darryl Hollenbeck, he painted the Iron Orchid, and the Grasshopper, both cars were at the AMBR roadster show, and he and his wife Terri, have a human sized egg chair that's custom pains, the Darryl and Art Himsl pained together. And he Bella's to match theirs.
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Next we went on a make a wish adventure, and she chose Disney World. It was an amazing time, all my pictures are on my phone, and at the moment, I'm on Bella's iPad. But it was an incredible time, and she early had a LOT OF FUN.
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She looks great man - glad she had a good christmas - prayers from Cali !!
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Next, with a little bit of help from Omar, for logistics of where to go and stay, we flew down to L.A. 2 weeks ago to the AMBR Show (Americas Most Beautiful Roadster) to surprise Darryl and Terri Holenbeck. They have done a lot for Bella, and have sent her some money to do (in their words, whatever gives her happiness, and fun), so with us being a huge car family, and them also being involved in the industry, what better way to use her "fun money" than to surprise them and spend the fun with them!?!?
If you don't know, Terri Holenbeck is the sister of Roy Brizio, of Brizio HotRods, and the daughter of Andy, of Andy's-T's t-shirts. So the family is heavily involved with HotRods. And Darryl painted several of the cars that were entered in the show. Bella met some very famous car people, including JimmyShine, BillyGibbons, RickDore, KeithWeesner, AaronKahan, JimmyVaughn, etc., all friends of the Holenbecks. Bella was the Star of AMBR!!
She was invited to hand out trophy's on stage, and with the help,of the Brizio family, we had lunch at the Hall of Fame luncheon. She sat in dozens of cars, including several, that hadn't been sat in since their finish for the show, including the lead singer for Mettalica...James Hetfields car.
Robert Gallery, a football player, Barry Weiss from storage wars, and comedian Chris Titus.
She even rode on the restored Carousel, called The Finkosel, built by ad Roth. It's at the Galpin Motor Sports museum, along with the Iron Orchid, and Grasshopper.
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AMBR pictures
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AMBR PICTURES.
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Pics of Bella's egg chair, the Holenbecks egg chair, and rods that were built by Andy Brizio and painted by Art Himsl in the 70's and what the 2 egg chairs' paint jobs were patterned after.
Then 2 of the DisneyWorld, Make-A-Wish trip.
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And most recently our own Jimpen and his wife Jen sent us a couple of handmade hats that Jen made for Bella. Thanks again you 2.
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And now today. She went to school for the first time since her admittance into the hospital for the start of Chemo treatment on May 23, 2014. She had a good day, had fun, and we will continue that with close nurse monitoring, and weekly Dr./hospital visits.
And her loose tooth fell out.
Thanks for taking the time to read this. It's been a hell of a ride, and she's fighting back, and is currently in Remission, and hopefully we only go up from here!!
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Oh yeah, forgot, she was interviewed by the local news channel about her Make-A-Wish trip
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You have a beautiful little girl I'm glad things got better I'm a father of 2 young ladies and a son don't know if I could handle what you had gone through I'm not one to comment on stuff like this but I've followed ur post and seeing pics of her smiling ear to ear after her struggle makes you appreciate life and hold my kids close thanks for sharing your story and I hope all continues to go well maybe even meet you and your family on the water some day ,until then best wishes to you and your baby girl
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Thanks. She's the hero here. People often say "how do you do it, I couldn't!!". Well to the contrary, if it was your child in a similar position.... You would just do it!!
You do any and everything you can to help,and protect your kids.
When I first started posting this stuff here and on InstaGram, it was to keep her memory alive, because at that time 8 months ago, she was dying. Things have turned around, but back then, with her type being so extremely rare, no one knew!! Here and I.G. Now I'm happy to just post pictures of her happy and having fun.
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Ken,
Thank you for sharing these touching feelings and moments of your life with us. Having 2 boys of similar age it really struck home how quickly life can change. You have my utmost respect for overcoming unimaginable challenges and everything you've done for your little girl. A lesser man would have folded. Hell, I may have folded! But you stuck through it and got to see your little girl happy again. HUGE props to you.
I can see where your girl gets her fighting spirit from. Seems as though hard work and tenacity runs in her blood. It's so awesome to see her laughing and smiling again.
Best wishes to you and yours,
Chad
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Thanks Chad. If it was your kid, believe me you would do the same. I'm nothing special, but Bella is. Thanks for the kind words.
I also see your from The "Big Island"... I haven't been there in 30 years, but my dad (I guess that means I am too) is Hawaiian/Portugese, and is from Maui.
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Thanks Chad. If it was your kid, believe me you would do the same. I'm nothing special, but Bella is. Thanks for the kind words.
I also see your from The "Big Island"... I haven't been there in 30 years, but my dad (I guess that means I am too) is Hawaiian/Portugese, and is from Maui.
I'm actually on Oahu, The Crowded Island! LOL! Carvalho is a fairly common name here. Was gonna ask if you were Portuguese (or "Portagee" as we joke around here). If you're ever back in town hit me up!
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Yeah, Carvalho there is like "Smith" here on the mainland!!