well great news. we go home tomorrow. feeding tube is out. full 8 feeds.
the only advice i can give to anyone that has to go through this is to be strong, and be assertive with the doctors. if you allow them to go at their own pace, you'll be here for years. we went from 4 feedings only, to a full 8 within a matter of days after we leaned on the doctor. she was showing all cues that she wanted more food, steady weight gain, etc. the nurses unfortunately follow what the doctor says and he only came around once in a blue moon to read a chart. not that i have any clue wtf im talking about medically but you're the parent. if you want to hold your child, do it. if you want to feed your child, do it. if you dont like how a doctor or nurse is handling your child... get rid of em.
