once that heals you wont even be able to see it.  plus i cant remember the last time i judged someone based on their ankles.  chances are later on no one would even know unless she told them and pulled her foot up to their face and said "see look, right there..." pinched it really tight until it turned red, etc. 

Ha, I like the shirt idea! That's clever. Anything to make them feel "normal".


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Although a "meet" would be fantastic, I'm up in Spokane, Washington, with a broke down boat.

Even though YOU -Ridindirty89- live in my hometown (LindaVista to be exact, right next to Kearney H.S.) man I miss home, wish I never left!!

We are just in a waiting/ holding pattern. Her blood work came back good, but the MRI, and CT scans show "growths" in different areas of her body.
Although the blood "seems" clean, they are saying it is most likely Lymphoma!!
We are still waiting for the results of the Bone Marrow tests.
We live in Spokane, which is on the east side of Washington, right at the Wa/Idaho border along I-90, and the testing is being done in Seattle on the exact OPPOSITE side of the state. As soon as I find out anything I'll let you guys know.


I TRULY APPRECIATE THE CARE AND CONCERN HERE, ITS NICE TO KNOW THAT COMPLETE STRANGERS HAVE COMPASSION FOR MY INNOCENT LITTLE GIRL...THANK YOU SOOO MUCH, Ken

Hey Ken

How long before we find out something on our little girl!

Mark


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Hey Ken I donot know you but am going thur life changing stuff also / as men we find it hard to talk about  up close and personal stuff I finally had a moment like yourself and put it out here on FB and the support and comments really helped a lot  knowing there are some truly great peeps out there that care and such. Hope that all goes well with your daughter. Dads and daughters have a special relationship. Just in case you were wondering. My high school sweetheart and wife of  almost 40 yrs has Alzheimer's at 58 yrs old.
Stay strong and everyone's thoughts and prayers are with you

Crap, sorry Mark, didn't see your reply.
Here's a run down...
Blood has been drawn 4 times now for testing, bone marrow has been collected, MRI, and CT scan has been done, and tomorrow, she is going in for a PET scan.
She has a growth on each of her ankles, on a thumb, and on her forehead. The blood work comes back clean for Leukemia, but not negative for Lymphoma. Our town (Spokane, Wa.) doesn't have the facilities for the in depth microscopic and biopsy tests, so everything is being sent to Seattle, and it is still inconclusive, so tomorrow with the PET scan, they will be checking her blood and organs.
The hardest part is not knowing what is wrong with my little girl. Once it is figured out, we can come up with a plan of attack and cure her, but man o' man the waiting is HARD !!
Once I find out any knew, news I'll be sure to post it. Thanks for taking the time to be concerned enough to ask about her!!!

Ken, Belinda, and my baby...Bella Carvalho

Ken

Thanks for the update. No news is better than bad news. We think I you guys daily keep up the good fight and as always keep us posted.

Mark


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Another quick update... Bella was in unbearable pain on Fri. Night, so we brought her to the Hospital. After the usual 45 min vital signs and check in, while the whole time all I could do was just stand back in horror watching my little girl suffer and cry in pain, she as admitted officially.
I fully understand that the Drs. and nurses have to do all the pre pain medicine stuff, and check her out, as they don't know us, from the next person in pain, but it was still gut wrenching for my wife and I.
So then they put her on a morphine drip, and the pain is being managed. She is still hurting, and it is still soo soo hard to just stand there and watch her in pain, but it's all we can do.
They have found several "hot spots" on the PET Scan, in the back of her knees, her groin, and her ankle. She has now gone down for another MRI, to check out her wrists, that are really starting to hurt her, more than it has lately.
 Little to no sleep, and just pacing back in forth in this Childrens Hospital room is driving me nuts, but I finally had a chance to write this while she is having her MRI.
Only 1 adult could go with her, and while it was hard to do I chose to not go so her mommy could be with her.
Anything more and I'll update when I can.

just squirtin, sorry to hear that, I hope things get better for you guys, that's a long lifetime together.

jimpen, man that's a kick in the balls, sorry, I hope things get better for you. I had no idea how many this disease affected. It's a life/ eye opener.

Thanks all for the support, Ken

Hey Ken
Sorry it took me so long to reply we were away for the weekend. Sorry to hear Bella is in so much pain. Have the Doctors figured out her prognosis yet? Were all praying for Bella and your family.

Mark


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Stay strong and positive. My wife and I send hugs to your baby girl. My Mother believes that positivity was a large part to her winning the battle against Ovarian Cancer. And so do I. We wish your family the best.

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If you need anything from my family please don't hesitate to ask.  We're all ways willing to help with all we can.  We have been through a lot ourselves and with friends.  Stay strong and lean on friends and faith you will need it.  We will keep you family in our prayers.

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Update:
They started chemotherapy last night. She has an extremely rare form that affects less than 3% of adult cancer sufferers. There is a zero report of it in children world wide. It is a form of leukemia that affects the blood and skin. It is called BLASTIC PLASMACYTOID DENDROCYTIC LEUKEMIA, (B.P.D. Leukemia). They are doing a very aggressive chemo treatment of 10/5/3, 10 pills of 1 type of Chemo, 5 pills of 1 type, and 3 pills of 1 type, so in 10 days she'll at least get one dose, on five of those days at least 2 doses, and on 3 of those days, 3 doses. Sleeps for about an hour at a time, and basically throwing up on the hour every hour. They will tonight administer some anti nausea medicine. But couldn't last night? She's still on a constant "drip" of Morphine, and hurts a lot.
The hospital has been very accommodating, but man, it sucks "living" here. If all goes as planned, in 2 weeks, she will go home for a week, and then after that week, back here for another 2 weeks, for her next dose of chemo treatment in the same manner as this week.
That will go on for 2 months worth of Chemo treatments, so I believe with the breaks in between and extra days, this will be a 6 month situation??
After that, there will be a StemCell transplant. My wife and I have another daughter, Kendra, and "hopefully" she'll be a perfect match and we won't have to go on a waiting list for donors.
They already harvested cells and blood from her and in 2 weeks we'll find out if she's a match.
We have other children, but Kendra is the only one from both my current wife and I along with Bella.
The other kids are from our ex's. So they are a "possible" but not a "probable" which doesn't make sense, as they still have one of ours DNA's but the Dr. said, that how it works?!?!?
That's about all I have for now, and I'll keep you all informed as I get more info. I'm going on a 3 day migraine, and just am exhausted. Gotta get up at 4:00am to get to work.
Thanks all for your continued support and concern, I --WE-- truly appreciate it, Ken

Hey Ken,
I'm so sorry you and your family have to go through this.
I'm not sure if you know of http://bethematch.org/. There seems to be alot of info and support about dealing with Leukemia.
Try your best to take care of yourself as well.

We're praying for your family.

I want to ad, that my wife and other daughter has made a Facebook page for Bella.
It is: Rarity - IzaBella Carvalho
I myself don't  do Facebook, so I haven't seen it until I get to my wife's computer in a bit.
It is just going to be a page to say hi, send her well wishes, and look at and post pics of her and her having fun.

---I want to be sure EVERYONE knows, this is not a "phish" or "donation" request page, it is just for and of my baby girl.---

I am a member of a few sites such as, The HAMB, InstaGram, Jalopy Journal, Skagen, Chevy Bombs, Ford Barn, Lay It Low, etc., etc., but this is THE ONLY site I've revealed all this and shared it all. I'm either chopperimpala, or Ken on all those sites so if any one wanted to be "sure" this is all on the up and up, you are welcome to search out my username on any of those sites and see I haven't done there what I've shared here.

I guess I just wanted you all to know this is legit, and honestly for my little girl, and not a scam, since there are people out there that possibly would/could go about it in this way !?!?!?

In my original post I stated "I don't know why I'm posting this here" but I guess I felt more of a "family" atmosphere here than any where else, even though I'm very new to the site.

Thank you, Ken

Ha, yeah, that's about ALL of them though. They are safely saved in my "FAVORITES"!!!
If it wasn't for a favorites button, I wouldn't remember any of them.
And I posted all of them, so that nothing was hidden on my behalf.

No the anti-nausea medicine isn't working unfortunately. She is vomiting pretty much "on the hour". It hurts me just holding the pan for her and her having to have to go through that. It's like dry heeves. Gut wrenching!!