Damn, life has dropped me to my knees !!

« **Reply #75 on:** June 14, 2014, 04:54:47 PM »

And finally for now, here we are all together. I'm "white" and so is my son... But the wife is Mexican, and the girls all got the brown skin...thankfully!!!

« **Reply #76 on:** June 14, 2014, 05:04:01 PM »

I hope you get back to a normal life soon. You have a beautiful family and a extended family here all pulling for Bella. I look forward to going boating some time soon with Bella and your family. Stay throng and keep the faith. Love the pictures!!

« **Reply #77 on:** June 14, 2014, 07:21:51 PM »

Here's my orange hallett! You and your girl are in my prayers man!

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« **Reply #78 on:** June 14, 2014, 09:33:20 PM »

Hey Ken

Here's a couple pics of all of us at Catfish Cantina tonight. We made a little announcement about little Bella and these 2 pics are of us all wishing her well and we all love her and you guys. We can't wait to have you all at a meet.

The SCJB Gang

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« **Reply #79 on:** June 15, 2014, 09:42:34 PM »

Quote from: Ken on June 08, 2014, 04:14:56 PM

So, with reluctance, and if anyone is OFFENDED, or feels this is INAPPROPRIATE or any moderators want it removed, I will remove it:

The site is: gofundme.com
The title is: Bella Carvalho Cancer Fund

Also she has a Facebook that my wife and daughter are posting things on. I don't have F.B. myself, only the Instagram, but if your interested it is called: Rarity-IzaBella Carvalho

No offense and I find it totally appropriate. I fully approve this.

I am now following you on IG. I havent said much here but I have been only following this thread and reading it as I don't have much to contribute or say, but know I am following the updates. Thank you for sharing this with us.

I wish you the best and all the strength in the world.

...and Happy Father's Day.

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« **Reply #80 on:** June 15, 2014, 10:22:07 PM »

Brad, THANKYOU.
I feel completely relieved now, as this is YOUR site, and I was so worried about stepping on toes, and/or pissing mostly you, and others off.

Since I am so new around here, and then all of a sudden, here I am asking for money.

I know it was overkill with all my posting of telling everyone why and how hard it was to give out the donation site, but I really needed everyone to know that WAS NOT my intentions of starting the thread. There are so many crooks out there in real life, and in the internet world, that it was just something I needed to state and say outright.
I have been following the SCJB Instagram, but didn't realize you had one yourself, but am following that one too.

And then there is everyone's ManCrushMonday boy, the BigThrobbinJohnson, OMAR. I found him on there too.

**** you guys are great. Can't wait till this chapter of my life is fixed, I find that elusive perfect TIG welding job in SoCal, and my family moves "back home" and drinks a few, and hangs out with all you fuckers.
Thanks, Ken

« **Reply #81 on:** June 15, 2014, 10:25:01 PM »

**** ?
Sorry forgot this is a family friendly place!!
I'll change the F*CK to: "DANG, You guys are great"!!!!!

« **Reply #82 on:** June 15, 2014, 10:28:56 PM »

To the SCJB "gang":
I showed Bella the pic of you all, and she smiled and gave a thumbs up. The medicine for the transfusion has made her really sick, and she had an allergic reaction to the anti-biotics, so she wasn't able to offer much more than that, but she, as well as my whole family appreciates your guys support and love.
Thanks so much, Ken

« **Reply #83 on:** June 15, 2014, 10:29:28 PM »

Happy Father's Day man!

I read your updates every night. You and your family remain in my prayers.

Sent with my Fingers

« **Reply #84 on:** June 15, 2014, 10:38:32 PM »

More power, THANKYOU.

Today was really hard on her, as she felt really bad that she couldn't do anything for me on Father's Day because she is stuck in the hospital. But I told her all I cared about was that we were together, and the only thing I wanted her to "get" me was to "GET BETTER". That made her feel good.

The other issue is, is that the chemotherapy has finally affected her hair. We/she knew this and have prepared for it, but now that it is finally happening, it has really affected her emotionally.
She thinks she will be ....ugly, no one will like her, it will never grow back, people will tease her!!!
While we as adults understand that it is just temporary, and it will come back, to an 8 y/o little girl who has always had long flowing pretty hair, it is a major and traumatic ordeal.

Man this is hard. As a normally non emotional, heavily tattooed, kinda chunky, take no shit from anyone, and never leaves home without my StainlessSteel knuckles in my backpocket, I sometimes just break down and cry like a baby!!
It's a humbling situation, and now I realize how important my family really is!!

« **Reply #85 on:** June 16, 2014, 08:10:47 AM »

No harm in breaking down. Anything to remain that "rock" for your baby girl...

And btw she welds better then me haha. That is awesome seeing her in the shop!

« **Reply #86 on:** June 17, 2014, 12:38:23 PM »

I, too am like Brad. I have been following your thread and read it daily. I have liked your Facebook page also. I don't comment much on here, but have said daily prayers for your little girl and family. Please don't ever feel like you are stepping on any toes around here. Everyone I have met from here are good people. My thoughts, prayers, and best wishes sent to your Bella and entire family!

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« **Reply #87 on:** June 17, 2014, 01:41:37 PM »

Our prayers are with you and your family.

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« **Reply #88 on:** June 17, 2014, 05:39:09 PM »

I had 3 cancer patients in my class last year. Everyone was a girl and they all blew me away with the "can do" attitude and endless smiles. One was the fourth female in her family to have it in 3 generations as a teen. Docs told her she wouldnt live to 18. She graduated at 20 last month rocking her smooth bald head all the way across the stage. I know your little girl will beat this game too. It is all in the 'good. At least that's what the girls tell me.

« **Reply #89 on:** June 19, 2014, 09:43:37 PM »

LoLo: thanks
Stc: thanks
Glasscutter: it's terrible how many kids are affected, I'm glad they all pulled thru.

Update,
They finally have her off the Morphine drip!! She's in pain, but she is dealing with it, and the pain is nothing like it was before. They tapered her off, and yesterday was the LAST dose. She's been on it 24/7 since May 23rd.
She's eating a little solid food now, as they are trying to ween her off her food IV also.
They have been letting her walk around, and play a little, (45 minutes at a time) 3 times a day, completely free of her 3 bags of medicine and IV pumps.
She has lost soo much hair, but she is "kinda" o.k. with it, as we are saying that the sooner all her hair is gone, that means the sooner she will be getting better and the sooner it will grow back!!
Hair may seen inconsequential to us adults, but an 8 year old little girl is affected by it a lot. Especially growing up with 4 older sisters. Hair styles, sprays, conditioners, etc. Have been a big part of this household but now, none of that means anything!!!
That's all I have for now, thanks again for all the support, it means A LOT TO ME!!!
KenCarvalho

« **Reply #90 on:** June 21, 2014, 12:22:30 PM »

Ken
What do you tell a brother who's going through a trial like you are?!
I will say that I am and will continue to pray for your family.
I can't tell you why things like this happen to people that are so innocent and pure...... God will have to explaine that some day.
I am a pastor of a church so be assured when I tell you I will pray for you little girl, and for you.
I agree with those who told you that the things you are feeling are quite normal.
I hope and pray all works out for the good for you and your family!
Be encouraged because with God all things are possible!

« **Reply #91 on:** June 21, 2014, 03:47:30 PM »

Tepcro, THANKYOU.
When something like this happens to such an innocent, happy, and pure little person ( including my daughter and anyone else's child), it's hard to keep an open mind about why/who/and how come this is happening. Thanks for keeping us in your thoughts, Ken

« **Reply #92 on:** June 25, 2014, 10:36:43 PM »

Another update, was holding this one back, for a better result, but, it's been a rough 3 days.
Bella has had a 101.4 to 103 degree fluctuating fever, she caught an infection, and has been on quarantine for 3 days, NO one in, and NO one out. So I've been suck in a waiting room for 3 days in a row, only to be able to peek at her and wave to her through a window. Finally tonight I was able to get in the room, so I crawled in the bed and laid with her and just held her (the infection was not and is not something I could give her or get from her) the quarantine was so she couldn't pass it on to other sick patients on the cancer floor, and her visitors could pass it either by way of touching things like door knobs, water fountains, faucets, etc., outside of her room. So if a visitor wasn't in the room when they discovered it, they were not allowed in. My wife also was not allowed out of the room. Every time a nurse or dr. went in, they were all "smocked up" and sterile, like they were going into surgery.
So anyways, I got to hold her, kiss her, and talk to her today, and now I'm on my way home for a quick bit of shut eye before work in the morning.
Ken

« **Reply #93 on:** June 25, 2014, 10:42:25 PM »

Quote from: Ken on June 25, 2014, 10:36:43 PM

Another update, was holding this one back, for a better result, but, it's been a rough 3 days.
Bella has had a 101.4 to 103 degree fluctuating fever, she caught an infection, and has been on quarantine for 3 days, NO one in, and NO one out. So I've been suck in a waiting room for 3 days in a row, only to be able to peek at her and wave to her through a window. Finally tonight I was able to get in the room, so I crawled in the bed and laid with her and just held her (the infection was not and is not something I could give her or get from her) the quarantine was so she couldn't pass it on to other sick patients on the cancer floor, and her visitors could pass it either by way of touching things like door knobs, water fountains, faucets, etc., outside of her room. So if a visitor wasn't in the room when they discovered it, they were not allowed in. My wife also was not allowed out of the room. Every time a nurse or dr. went in, they were all "smocked up" and sterile, like they were going into surgery.
So anyways, I got to hold her, kiss her, and talk to her today, and now I'm on my way home for a quick bit of shut eye before work in the morning.
Ken

Keep your head up buddy... I don't have the words. She is going to be a seriously strong young adult with an incredible appreciation for life, If that is a positive... I think it is. IDK...

Nothing bud good thoughts and my remaining karma coming your way..

GT

« **Reply #94 on:** June 25, 2014, 11:54:06 PM »

Quote from: Ken on June 25, 2014, 10:36:43 PM

Another update, was holding this one back, for a better result, but, it's been a rough 3 days.
Bella has had a 101.4 to 103 degree fluctuating fever, she caught an infection, and has been on quarantine for 3 days, NO one in, and NO one out. So I've been suck in a waiting room for 3 days in a row, only to be able to peek at her and wave to her through a window. Finally tonight I was able to get in the room, so I crawled in the bed and laid with her and just held her (the infection was not and is not something I could give her or get from her) the quarantine was so she couldn't pass it on to other sick patients on the cancer floor, and her visitors could pass it either by way of touching things like door knobs, water fountains, faucets, etc., outside of her room. So if a visitor wasn't in the room when they discovered it, they were not allowed in. My wife also was not allowed out of the room. Every time a nurse or dr. went in, they were all "smocked up" and sterile, like they were going into surgery.
So anyways, I got to hold her, kiss her, and talk to her today, and now I'm on my way home for a quick bit of shut eye before work in the morning.
Ken

Hey Ken

I know I haven't chimed in lately I just don't know what to say. All I can say is is just hug and kiss and cuddle that little girl every chance you get and Im sure you are buddy. Every time i check in on Bella either on here or through my wife's Facebook I go hug and kiss my little Sierra. Just know I'm thinking of you guys daily. Also if you Guys are going to do the pink Bracelets post a link where we can buy them I want some. When you see Bella tomorrow give her a big hug and kiss and tell here it's from the whole SoCalJetBoat family.

Mark

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« **Reply #95 on:** June 26, 2014, 08:17:13 AM »

Thanks.
just got off the phone with wife.
she hit 103.9 degrees and was not doing good. But they have the fever down, and unfortunately had to put her back on the Morphine for the pain.
Her body is building back up her immune system, and "coming back" from the chemo, but is NOT liking the process.
Thats how the nurse explained it.

« **Reply #96 on:** June 29, 2014, 06:06:20 PM »

Brought my baby girl home today. NOT for good though. But it's so good to have my family at home.

We have to take her to Seattle tomorrow for the hospital consultation on her bone marrow replacement.
We will be there for 3 or 4 days, and then she comes back home to Spokane, and back into the local hospital here.
She will then start her second round of 3 chemo doses at once, and the 2 blood transfusions. Then after she is back up to her cell counts and numbers, that's when she will be off to Seattle for her 6 month stay, for the bone marrow replacement.
Her and my wife will stay there, I'll have to still go to work, and drive over there on the weekends I don't work.
She's in good spirits today, and slowly and carefully, walking around and enjoying some fresh NON hospital air.

« **Reply #97 on:** June 29, 2014, 06:37:48 PM »

PLEASE be sure you and your wife get as educated as you possibly can on all of the drug routines that little girl is going to be on. Medical professionals are under such intense pressure these day due to new regulations that many things can and do get missed. Have your wife pay attention to what the nurses do and get to where you know what they will do before they do it.
Prayers for strength and a positive resolution continue to go out to you and your family Ken. Keep the posts here and elsewhere coming. It is good for us all.

« **Reply #98 on:** June 29, 2014, 07:14:15 PM »

Glasscutter, thanks, that's great info.
We got a large "write on" plastic calendar, special "tackle box" like container for the meds, and an "accordion style" file folder for all the receipts, and medicine instructions.
My wife was trained yesterday for a few hours on everything, but that's a lot of info at one time, and they also gave her lots of procedural, and time stamp instruction booklets for it all to. So we are on top of it. Nothing is to overkill on safety when it comes to my princess.

« **Reply #99 on:** July 08, 2014, 08:08:35 PM »

I did a copy and paste frmo I.G. so I didn't have to re-type it all again.

Ken

jimpen

Bunger

5oclocksomewhere

Brad @ SCJB

Ken

Ken

Ken

MorePower

Ken

MorePower

LoLo1080

stc315

GlassCutter

Ken

Tepcro

Ken

Ken

GT Jets

5oclocksomewhere

Ken

Ken

GlassCutter

Ken

Ken