Damn, life has dropped me to my knees !!

« **Reply #125 on:** July 09, 2014, 04:06:11 PM »

Laying beads all on her own.

« **Reply #126 on:** July 15, 2014, 09:43:09 PM »

Some good news. Her second round of chemo went really well. She got the normal sickness and all that goes along with the treatment, but her blood counts are up, and her body reacted and did everything the doctors hoped for.
Sooooo, tomorrow she is coming home to "hang out" for 3 weeks. She will be very weak and fragile, and will be in a wheelchair 99% of the time if we go anywhere, BUT...... She will be home!!!
After the 3 weeks, she will then be readmitted for another round of chemo before heading to Seattle in Sept. For the marrow transplant.

« **Reply #127 on:** July 15, 2014, 09:45:59 PM »

Two months ago, compared to today 7/15/2014

« **Reply #128 on:** July 15, 2014, 09:54:42 PM »

Ken

That's some good news Bella is quite the trooper. So glad to hear she kicking this right square it the teeth. Let Bella know I have shave my head twice in my life, once 2 years ago for child cancer awareness month an the second time was last night for Bella. You guys keep fighting the fight and well keep praying.

Mark

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« **Reply #129 on:** July 15, 2014, 10:12:01 PM »

That's crazy!! I will definitely tell her. Thank you.
I shave my head too, but that's only because I'm over half bald anyways!!
Thanks Mark.

Ken

« **Reply #130 on:** July 15, 2014, 10:44:24 PM »

Quote from: Ken on July 15, 2014, 09:45:59 PM

Two months ago, compared to today 7/15/2014

Still got the same beautiful smile!!! Your little girl is braver and stronger than a lot of grown men care to admit.

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« **Reply #131 on:** July 15, 2014, 10:55:16 PM »

Yes she is, thank you. I readily admit it to her every day. Yes it's heart breaking for her mom and I to go thru OUR aspect of what's going on, but what SHE is actually going thru is only comprehendable by herself, and other children that have also gone thru this. I now look up to her!! I'm now her shadow.

« **Reply #132 on:** July 20, 2014, 05:37:35 PM »

Well she's been home for a couple of days, and besides a few bumps in the road back to the hospital here and there, she's doing good. She went to a birthday party today, and it was good to see a REAL SMILE on her face versus a forced one for the camera.

« **Reply #133 on:** July 20, 2014, 05:46:13 PM »

That's great news Ken we will keep her in our prayers.

« **Reply #134 on:** July 20, 2014, 05:54:23 PM »

That's awesome!

Glad she is getting a chance to have some regular kid fun.
We tend to take this stuff for granted. Thank you for sharing to help remind us not to.

« **Reply #135 on:** July 21, 2014, 05:20:19 PM »

Yes, taken for granted is so true. She came home exhausted, but happy. Her being happy is ALL I CARE ABOUT ANYMORE.

Today my wife, our other daughter and her boyfriend are taken her to a baseball game. I'm not a sports person at all, and there were only 4 tickets available..... So it worked out great!!

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« **Reply #136 on:** July 21, 2014, 10:19:29 PM »

So much good news coming your way, and more importantly, Bella's. Hopefully there will be more good things coming in the future.

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« **Reply #137 on:** July 25, 2014, 08:09:34 PM »

Well FUCK!! She's back in!! Since being able to go home for a while, she has to go into the Drs. Office every other day for blood transfusions and vitals, and she spiked a 103* fever, and her blood count numbers hit 0 !!! They need to be at least 375 to not be in quarantine in the hosp. so she is in a "no one in, no one out" status. The scrubbed me and gowned me and let me sneak in last night, and I didn't leave until this afternoon, but I can't have contact until those numbers rise. 5-7 days roughly. My wife is with her so thankfully she isn't all alone, but still not what we were expecting.

« **Reply #138 on:** July 25, 2014, 08:38:41 PM »

Ken sorry to hear that. We will keep Bella in our prayers hang in there.

« **Reply #139 on:** July 25, 2014, 10:48:29 PM »

Quote from: Ken on July 25, 2014, 08:09:34 PM

Well ****!! She's back in!! Since being able to go home for a while, she has to go into the Drs. Office every other day for blood transfusions and vitals, and she spiked a 103* fever, and her blood count numbers hit 0 !!! They need to be at least 375 to not be in quarantine in the hosp. so she is in a "no one in, no one out" status. The scrubbed me and gowned me and let me sneak in last night, and I didn't leave until this afternoon, but I can't have contact until those numbers rise. 5-7 days roughly. My wife is with her so thankfully she isn't all alone, but still not what we were expecting.

Ken

I hope Bella and you guys catch a break soon. Keeping you all in our thoughts and prayers.

Mark

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« **Reply #140 on:** July 26, 2014, 08:21:37 AM »

We will also pray for your little angle could not imagine what your going through but we will have your family in our thoughts.

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« **Reply #141 on:** July 29, 2014, 09:24:56 PM »

Thanks!!
Been working on welding up an aluminum jewelry box for her. I made 2 of them, one I'll paint Gold Flake, and the other I'm going to polish. I had her name and her little personal saying engraved on our work engraver.

« **Reply #142 on:** August 04, 2014, 05:31:09 PM »

Well Bella worked her ass off with her physical therapy, diet, rest, etc. And she was able to go to a camp adventure. It is a camp for children with cancer. Several of her nurses from the hospital, and her primary cancer Dr. are there so she is in good hands. It was hard for me to "let her go" (physically, not decision wise) as she has never been away from home for more than a day, and since her diagnosis, I have been with her everyday.
Daddy's little girl is growing up!!!

« **Reply #143 on:** August 16, 2014, 04:11:53 PM »

Saw the "wedding gift" post on FB just now. Bella is beautiful and heroic. Simply awe inspiring.

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« **Reply #144 on:** August 16, 2014, 06:28:18 PM »

Thanks. Yes she is great. She wasn't too happy that I shared her picture, as she wasn't ready for everyone to see her baldness. I was overly proud of her, but she wasn't ready, and I didn't know. She is still getting used to family members seeing her like that, but not the world just yet.
Also, I got her support bracelet tattooed on me, since I'm a welder and manual machinist, I don't wear any jewelry, such as necklaces, rings, or bracelets, so this way I always have her with me.
It says: "You gotta have HOPE" it's what she told us when we told her of her diagnosis.

« **Reply #145 on:** August 16, 2014, 08:48:44 PM »

Prayers and thought are sent your way... Keep up head up. Stay strong

E

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« **Reply #146 on:** August 16, 2014, 08:50:45 PM »

Prayers and thought are sent your way... Keep your head up and Stay strong

E

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« **Reply #147 on:** August 16, 2014, 11:20:47 PM »

Quote from: Ken on August 16, 2014, 06:28:18 PM

Thanks. Yes she is great. She wasn't too happy that I shared her picture, as she wasn't ready for everyone to see her baldness. I was overly proud of her, but she wasn't ready, and I didn't know. She is still getting used to family members seeing her like that, but not the world just yet.
Also, I got her support bracelet tattooed on me, since I'm a welder and manual machinist, I don't wear any jewelry, such as necklaces, rings, or bracelets, so this way I always have her with me.
It says: "You gotta have HOPE" it's what she told us when we told her of her diagnosis.

Unbelievably strong girl you got there!!

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« **Reply #148 on:** August 24, 2014, 09:08:27 AM »

Just giving another quick update.
Haven't been on much as we have been busy, busy.
Bella is home again now, came home Friday, and is doing her Chemo as an out patient. What a rough ordeal, at the hospital she is kinda catered to by the nice staff, but at home it's just my wife and I, and that stuff makes her very sick. So between her being sick, trying to keep her as comfortable as possible, and working 60 hours a week, and doing the normal fatherly/husband things, I've been unable to keep up on top of it all here.
I do the InstaGram updates a little more often as it's just a picture and a quick note, and my wife keeps Bella's Face book updated regularly, if anyone is interested. I'll post a few pictures do her smiling because that's the best way I like seeing her.
My 19 y/o daughter also got married last week, (adding to the hustle and bustle of activity) and Bella was the ring girl for both rings. Bella also shaved her head and she has been dealing with the final true loss of all her hair. The straggling long pieces of hair here and there was bugging her so.... It's gone.
Thanks, Ken

« **Reply #149 on:** August 24, 2014, 10:25:33 AM »

Ken, I myself am going through the same thing. My oldest son is 15. He has Ewing sarcoma. It's been more rough for me and his mom. You see how strong your daughter will be through it all. Thoughts and prayers to you and your family.

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