Well it's been a long time since I've been on here "to post" I visit a lot, just never have anything to say!! But I figured I'd at least give an update, since some may have been wondering, and I just kinda left for a bit.
For those who are seeing this for the first time, and don't want to wade thru from the beginning, basically my 9y/o little girl was diagnosed with an extremely rare form of cancer, (she is the 33rd kid known to have ever gotten this type).
I kinda vent, talk, and post pictures on Instagram, and what little I voice here, and that's about it. I don't Facebook, or Twitter, or Timder? Or anything, so, although on my IG it looks like I'm an outgoing energetic person, actually it's the opposite.
So, with all that Laid out, Bella will be starting her 8th round of Chemo on Wednesday, she is extremely sick, and are on some steroids that are so strong that they mess with her emotions, and feelings. She can be walking on cloud nine, and happy, and in moments will be so enraged that it's like she's telling us to FuckOff, and then will break down and cry inconsolable. It's a hard thing to see her go thru this and deal with, but it's a fact of our lives now. She is losing her hair again for the third time, and while we as adults know it isn't a big deal, it's a very significant thing to a pretty little 9 year old girl. Now with all that said, I/we have NO IDEA if all this treatment is working, this form is so rare, the Drs. don't know what to expect!!! We have had an outpouring of help and support, and a lot of good people have been there for us, and we appreciate it.
Now for some good news. I'm originally from SoCal, and we visit there (I'm in Spokane, Wash. now) several times a year, but this year, it was all put on hold. Mainly because she was hospitalized for 3 months, and my wife had to give up her job to be with Bella 24/7 in the hospital, and out. So money was/is tight.
Anyways, several friends from so cal, including several "big shot" car people ...(Terri Brizio/Hollenbeck, Darryl Hollenbeck, Alex&Suzie Gambino, Aaron from Lost Angels project, Andy's-T',s TPCustoms) all chipped in and helped us go on a trip to Cali for Bella. What we wanted to do was just stop and say hi and Thankyou to everyone that helped and gave her gifts, and get her to Imperial Beach and ChicanoPark in SanDiego.
But what ended up happening was an impromptu Lowrider Crusie thru the streets of SanFrancisco, and a 200 plus car turnout in the parking lot of the SF Giants, put together by Tyler from TPCustoms, then spent the night at Gambinos Customs and had dinner, visited Darryl's shop (Vintage Color Studios) he's the guy who painted Mumfords '13 GNRS winniner built by Brizio's Rod Shop, and The IronOrchid, and many others, toured Andy's-T's tee shirt shop, and Terri Brizio set up horse riding lessons for her. Aaron is the guy who built the giveaway roadster at the Ventura Nationals, and he took her surfing, and the biggie, was we took her to Disney Land. She got to go behind the scenes, meet and greet, and head of line passes. I know these are all HotRod/Custom related things, but figured most of you are car people too.
Anyways, that's about all for now, I'll try to keep more current info, I'm just kinda of a slacker lately with all the shit going on in our lives, and that's all on me. Hope this was informative and welcome here, as I feel that I gave up on the site, but in actuality, a day goes by, then a week, then a couple of weeks, then a month, and then I don't know how to re-approach you all, but this time I just did!!
Thanks, Ken
